Yesterday driving from Omaha to Norfolk through the most beautiful green fields of corn, soybeans and alfalfa, through small towns where time seems to have stood still I was very aware of the abundant food supply Americans depend on without even a thought about where it comes from.

Our liberal politicians rarely come from here. Biden and Harris are from the east and west coasts. Flyover states rarely get visits from anyone on the left. Trump changed that.

The people of rural America feel seen and heard in a way they haven’t experienced before. Trump’s lack of formal education works in his favor here. Not because rural American is stupid but because they must be educated differently. Biden and Harris don’t know squat about rural concerns. The Left decries the Electoral College and the two Senators for each state but without that structure this heartland wouldn’t have a voice at all. They will be heard.

In my experience Liberal values have come across here as out of touch with real life. Religious Christian practice has deep roots here – the landscape is dotted with Catholic, Lutheran and other Christian churches. Towns large and small were structured with church at the center. Trump’s supposed conversion allowed people to feel safe with him and know that they would be seen and heard. Though he’s a hollow shell part from the worship of others few knew him apart from his image of success. He was the perfect idiot for the far right to use to grab hold of the party. He did not disappoint.

The Trump Administration poured government money into rural and America. His Ag secretary told a crowd at a convention Dean was at that he always told Trump to have his checkbook out when he came to town and Trump did just that. Reinforcement is a powerful thing. But with Trump the door to the crazies opened wide up. Playing into the fears that liberals, empowered by Satan at worst and Coastal elites at best were set on changing life here, good solid caring people find themselves capable of believing utter bullshit and don’t even realize it.

An example of this is a story I heard yesterday about a situation at our local high school. I was told that a special bathroom was built there as a pet relief station for a kid who would only relieve himself like a dog. The government said he had to be accommodated. As someone who spent a bit of time in Special Education I was immediately suspicious. 🤷‍♀️

First off – ANY accommodations we need for our most difficult students in public schools require a whole lot of work to ask for and then obtain in a timely manner. Requesting a special bathroom is just not even on the list because the normal ADA requirements make our bathrooms accommodating to begin with. We have kids in wheel chairs and with walkers. We even have older kids in diapers because their bodies don’t work like normal.

Second – IF we had a student who was mentally ill to the extent that he thought he was a dog, a regular public school would likely not be the place for him. He would be in a very specialized behavioral school instead.

Third – Any professionals working with a student with this severe mental illness would not suggest building a specialized bathroom to accommodate his delusion. They would work their butts off to change his behavior and in the process clean up mess after mess. They would literally work the miraculous with great skill.

I was 100% sure that this was not true and couldn’t rest until I checked it out this story with a friend who has devoted her life to public education here. Of course it wasn’t true. The rumor came from out of state was embraced by a state legislator eager to discover such a tale and then shared with his colleagues. Believed by the masses, this nonsense required a Superintendent’s letter to the editor and the Senator to recant. Clearly, once this kind of thing gets out and is believed, a lot of people never get the real truth.

I’m aching for my home state and mad that the best of who these people are is now veiled by this version of the GOP. Lynne Cheney and Adam Kinzinger reflect what the party once was. I hope that there are others who will question everything they hear and in so doing ground themselves in their own wise minds. It has been my experience that neither side has all of the answers and in order to reach wisdom rigorous debate is essential. Believing nonsense and rigidly clinging to it on either side serves no one.

In fall of 1983 I married my best friend and partner in Evangelical Christian ministry. We had spent the entire year before our September wedding preparing to go to Uganda, East Africa, with a ministry called Campus Crusade for Christ. Our task would be to go to small remote villages and show the Jesus film a movie based on the Gospel of Luke. The process to apply, be accepted and then plan to go was incredibly rewarding and we were so eager to go together. We began to raise financial support for the trip in the spring and received hundreds of dollars from friends and family eager to see us succeed until sometime in April when the financial faucet turned off. With our time limited, we had to make a decision. We realized that we had enough money for just one of us to be able to go and determined it would be Dean.

That summer I stayed home with my family and got my old job back for the summer. Having not planned on being there I was eager to meet up with friends and one day an old high school friend and I got together for lunch and caught up. She also had a wedding that summer and as fate would have it she was marrying a good friend of Dean’s from his fraternity in Lincoln. It was a small world. Maybe I should have known that serendipity can be incredibly deceptive at times and that no matter how the stars align, they should always be put through some good scrutiny, but I didn’t know that.

Maybe I should have known that not all friendships have to be reconciled even in the Evangelical Christian world.

Maybe I should have known that what my parents and others had told me would happen if I got together with her or anyone in her church would in deed really happen.

Maybe I should have known that it is often the most insecure among us who need to feel and experience the constant reassurance that we are the most unique and special.

Maybe I should have known that when other church members were sharing stories with me of those they considered highly spiritual with degrees in finance, engineering, microbiology and medicine were choosing to leave the world’s prestige behind them and taking basic jobs just to move there to participate in the church, that the human ego can masquerade as the Holy Spirit and create loads of dysfunction.

You see, the thing about getting involved in a cult is this…you really just do not know.

platitude: remark or statement, especially one with a moral content, that has been used too often to be interesting or thoughtful.

“he masks his disdain for her with platitudes about how she should believe in herself more”

We all use phrases we can utter without much thought to express ourselves. I’ve written about this before but after hitting it again a few times this week, I just have to say something. In a world of real people encountering real horrors, this platitude has never seemed more hollow.

The platitudes that grate me more than any others are those rooted in the idea that we are in and others are out. When we utter the phrase God is good and it is attached with our personal prosperity, we bear witness that we believe our beliefs are the beliefs that give us special favor. We inadvertently imply that if you aren’t getting to buy that new car, move up in your community or take that dream vacation, YOU haven’t discovered this goodness. This platitude used in this way is rooted the prosperity gospel used by people like Jim Baker and Joel Osteen. It is not, nor was it ever, used by Jesus to express that God is good.

Another way people of faith use this platitude is to encourage the poor, the struggling, the ugly, the addicts and the ill others in their midst to have hope. In spite of anything else true about their lives, they are encouraged to believe that God is good. The Christian teacher Bill Gothard took this so far as to teach that if a woman was raped, God had a plan. He went on to say that her task would be to believe so firmly in the goodness of God that being overcome and violated by a man would turn out to be good in her life!!!

Last week my son and his wife were asked to foster to adopt a third baby. While many infertile couples would give everything for one baby, they now have three! I’ve heard countless platitudes related to God’s goodness with respect to Finn’s arrival. I’ve also been living with the God is so good! ear worm going round and round in my own head. With thirty years of throwing this platitude out there like rice at a wedding, I am here to bear witness that it is way past time for us to stop it.

Saying some form of God is Good rarely, if ever, comes from any genuine grasp of a deep truth we actually know in our bones, it has instead become spiritual OxyContin used to avoid the harsh reality that God isn’t attached to any possible construct of goodness as we in first world prosperity driven religious countries can define it. In my mind and heart I can no longer just say that God is good as I express gratitude for anything in my life. I am beyond full of gratitude for these boys in my life but I cannot neglect the reality of how they have come to us. Any kind of concept that a good God would allow a mother and father to continue to conceive while not being capable of safely parenting their three boys simply does not compute.

Why? Because from where I sit, my son and his wife are the ones who are good. My country, where an imperfect foster care system exists to intervene and save the boys, that is what is good. To be high on the opioid of God is so good will not possibly work for this grandma anymore.

I actually believe in the goodness of Divine life. I believe in the co-creation with that life to make my life better. But seriously, my faith paradigm hasn’t come from prosperity, it has come as a result of personal reflection, radical acceptance and facing hard truth. It’s come from religious de-tox and self discovery. It’s come from authentic friendships where others wrestle with reality in similar fashion. I live with an abiding presence, I believe to be God but very often, very often, real goodness looks nothing at all like material or physical prosperity.

Please think about this and release your addiction to this phrase. Do it for the good of everyone.

As I approach turning 61 I think about where I’ve been, what I’ve been through and all I can say is that life is as awful as it is beautiful. I love my life but it’s been hard and I don’t say that for pity or even seeking empathy. I say it because it’s true.

Too many of us are ashamed of the hard. The fear, the insecurity and doubt that we genuinely experience. We receive so many cultural messages that tell us we get what we deserve and we know that to express any kind of weakness means we earned it.

In my Midwest hometown if you come from a very successful entrepreneurial family like I do, it’s akin to achieving royal status. As soon as you can leave the middle class neighbors and move up, things really begin to improve in your life. Then you get sick, really sick and almost die. You keep working because to rest and focus on your health means you are not taking responsibility for your life. Then one day the doctor tells you that you should never do the work you love anymore because the risk is too great. You heal up and feel better so you try it again anyway. Of course as soon as the doors shut for winter, the cold season begins and there you are, sick and using up all of your sick days. There you are creating so much work for others by your absences. And there you are quitting again.

My doctor in 1992 knew what he was talking about because he was an immunologist and infectious disease specialist. The pull up your bootstraps, get over yourself, and succeed no matter what worldview of my Conservative Midwest culture didn’t allow for people like me to have a place that was ok. Everyone tries to fix you because to have disease is not ok.

I cannot count the alternative treatments, potions and spiritually driven interventions that have come through my life in 30 years. The practitioners often built their practices because they needed access to the treatments they found helpful. Many of them have helped me a lot. Many have not.

As the pandemic arrived here and enveloped the world – so many of my friends in the alternative treatment community have embraced the idea that the miracle of the MRNA vaccine isn’t one because…when asked a few questions, only a very few have actually said that they humbly realize that the immunological, infectious disease experts actually know what they are talking about. Doctors who exclusively study Corona Viruses and what they do to our bodies are seen as charlatans and fear mongers. I’ve had such a struggle with this throughout my 61st year on this planet.

Today I realized that my doctor in 1992 knew exactly what would happen to me if I kept teaching, wiping runny noses and breathing the air in a closed classroom. His advice came from years of research and the labs tests in front of him. I was simply too proud and too devoted to my worldview to let go of my profession-also my passion. I rebranded myself as a SPED teacher and almost made it. I almost felt like I could face my successful family and community without shame. I can’t believe I am still feeling that I just missed the prescription, the one right cure and the healing. I now see it was there from the beginning. Dr. Tyler Martin, my doctor and friend gave it to me because it was the truth. I ignored it and it definitely made my life harder.

I think as I give thanks for making it this far, I will purpose to find a way to surrender. Sounds crazy perhaps but honestly, my identity has been built around this not being enough for so long that I really need to figure out how to dig deep and let go of it. I’ll never have the royal status that comes in my home culture with having money I actually earn. I’ll live in a home and enjoy a life I haven’t earned because I’m married to a successful man and the daughter of successful parents. I’m never going to be financially independent from my own effort and though I’ve known it for 30 years, my soul is entrepreneurial, my passion is endless and I really love work but I cannot.

I need to slay this shame dragon in year 62. I have to find the way to choose to accept …surrender to what is and maybe move again…JUST KIDDING!!! 🤪 I am not moving. Oy.

Having enjoyed a working relationship with the HOA Board in my suburban Texas neighborhood for two years prior to this summer, when approached to consider replacing one of the two departing members, I thought about it for awhile and decided that it was time for me to put up or shut up. I filed the necessary paperwork and became a candidate. I had no idea that this simple choice would turn into one of the most difficult of my life experiences since moving here to Texas but it did. As with most difficult things I encounter, I deal with them through writing. Having done a fair amount in my personal journals, I’m ready to put out there what the experiences taught me.

Earlier this spring the Board had announced that we as a neighborhood would need to vote on some newly updated governing documents they and another committee had been working on for some time. After the process was announced to the neighborhood, communication increased from the Board itself and among neighbors. One day I discovered a flyer on the community mailbox. There was no name or address on it, just a strongly worded instruction to READ the documents before voting and notations as to why that would be necessary. At first I ignored the flyer but when it arrived in my door with an email address on it, I sent an inquiry to the neighbor to discover what all the fuss was about. Big mistake.

What followed was a cordial dialogue for several emails and then as if out of the blue, I was told that I had drank the KoolAid, was actually just a liaison for the current Board, was a disappointment in light of what this neighbor had discovered about me online and that my brain was so compromised that I would be of no use to the neighborhood. (all my best recollection as I have deleted the conversation). I was so shocked and angry with this man’s insults that without much thought, I replied with this. ”Because of your experience in the military I am certain you can take this, F you!” Then shaking I told my husband about the conversation and asked him to read the emails. I was livid.

I am known to drop the F-bomb on occasion in private but have never, ever used the word in a conversation like this before. I just don’t do that. As a result, I was immediately filled with the most complex feelings of both intense pride at my own self defense and regret that I had actually said that to someone I don’t even know. I didn’t expect to ever think about this guy again. Wrong. More later.

Apparently I was on a roll to offend at the time because prior to the above discussion with one neighbor, I had been a participant in several discussions on our neighborhood Facebook page about the new governing documents and issues related to the process. Some of the discussions were heated and, as all social media posts can become, hurtful to some. At one point in a discussion that seemed endless, I asked another neighbor to let something go because I believed that her concerns had been acknowledged by those in the discussion and that none of us had the power do act on those concerns beyond that. It felt exhausting to keep going over the same topic.

My “instruction” was similar to pouring a cup of gas on a bed of hot coals. Boom. I had overreached and taken a position of authority over this person that I should not have. It was public and demeaning of me to do that. The next day I acknowledge that and issued a public apology on the page. I sincerely felt remorse and decide that because I did I would drop the neighbor an added personal note of apology. For me, it was how I had owned my stuff and moved on. What I did not know is that in our personal messaging between one another, somehow I only added to her pain and much to my surprise, she came to believe that I was diagnosing her with a mental illness. To say I was shocked is an understatement. Having a daughter who lives with mental illness and having worked in a treatment center for girls with mental illnesses, I was beyond mortified that my words would be interpreted in that way. But the ship, as they say, had sailed. I felt terrible. I tried to move on and hoped that at some point in the future we could talk face to face and resolve things in person. I had so much to learn.

What follows is the result of things that took place as a result of the two people I offended taking their offenses with me into the public arena. Oblivious to this I had already determined to no longer promote my candidacy for the Board position but to allow it to take its own course. I stopped interaction on social media and waited for the election to be over secretly hoping not to be elected but not sure how I would deal with a defeat either. Making mistakes and doing things we regret are hard enough but when those things are used against you without your knowledge, it is especially difficult.

Thinking that neighbor one’s email conversation with me was trivial, insignificant and private, I was completely taken back when I discovered that this man took a copy of our conversation and showed it to others even going so far as to try to convince a Board member that “someone like me did not belong on the HOA Board”. After the election was over I discovered that he had told others that I had said, “F you” to him. I couldn’t believe it was real but it was.

As if that wasn’t enough to blow me away, the woman who is certain I had diagnosed her with a mental illness posted the details of her experience with me on Facebook and told neighbors NOT to vote for me. She added that I wrote her an unsolicited snail mail letter. Seriously. 

The white male ego of men closer to my own age is something I’m so familiar with that I’m often blinded to it.  Unfortunately when the scales fall off and I’m hit with the full light of it, my response of FU is to be expected. I must learn to see it in its infancy and proceed with necessary caution. I see now that I need to be prepared to publicly call out abuse in the beginning before someone has a chance to gaslight others by crafting an alternate narrative that frames me as the abuser.

Words are powerful. Social media appears innocent, positive and a good place to discuss reality. I must learn to be more aware of the futility of beating a topic to death myself and especially to demand that another to let go of her hammer while I cling to my own.

I have learned that humans are all fragile. Regardless of military experience, intellectual prowess and skillful communication enterprises, at the end of the day we all just want validation, belonging and to be heard. 

I’ve been thinking a lot about where we are in this pandemic. Dean came home last Thursday after traveling for work with a case of breakthrough Covid-19. We’ve been in quarantine since. As fate would have it he arrived just a day after I had experienced a tense conversation with a very good friend about vaccine and I was still trying to recover from it. I love this friend as though she is my sister and I’m still not sure how to let it go and re-enter her life. The reality is that she has a very different perspective on the vaccines than I do to the point that the information she shared with me completely overwhelmed me and made feel as if I was expected to watch for the disintegration of my body as a result of the vaccine being present in it. I honestly had no idea what possible answer I could give her except to say, that of course, I must be a real idiot and will now have to live with my choice to alter my DNA, to get blood clots and a host of other things. As I don’t find that true, I didn’t know where that left me in her eyes and that was really tough. Then, just like that…my vaccinated hubs arrives from Nebraska looking like a ghost, tightness in his chest and cold-like symptoms. I knew right away that he had breakthrough Covid.

As the week has worn on and we’ve gotten used to once again being sequestered in the same house together, I’ve had ample time to reflect on this whole poop show we’ve been living through and I just started writing it out and this is the result of that reflection.

March 2020…When the World Turned Upside Down

Stephen and Theresa with their boys Bobby (just turned 2) and AJ (9 months) had lived in Cedar Park for one week. We had been helping with the move and babysitting. It was an exciting time. Stephen would no longer have the grueling 90 minute commute from South Austin to the Apple campus where he works. For the remainder of that year, Theresa would commute going south because they had found the “perfect for them” house just about 10 minutes from ours. Then…BOOM. Shut down. Having done the reverse commutes and putting the boys in their new daycare, everything about coming and going came to full stop. Everything about staying in and going ramped up to full speed. Suddenly we had Dean, Stephen and Theresa all working from home. I started to work from home too. It was crazy. 

After months of juggling and striving to get to the end of the school year, Theresa was able to stop working for the summer. Promises that it was a temporary thing were abundant. I clearly remember Jerad Kirschner saying very clearly that it would all be over by July of that year. July, however, came and went. With July also came news that Theresa had a tumor on her the L1 vertebrae very likely cancerous. Talk about feeling thrown into the abyss. I had already been watching the boys 3 days a week and she two because it was very hard for her with the backpain she was dealing with. On the days she watched them, she and Stephen would tag team while he worked. The stress level was incredible.

Dean was stuck working in our house slogging through a list of potential customers as a telemarketer instead of doing the actual kind of sales and technical advising he prefers to be doing. The threat of spinal cancer in the family took everything to an entirely new level of crazy. It is no easy swallow and clouds every damn molecule of air you are breathing as a family and this time it hit us within the context of a pandemic.  Covid 19, largely unknown even to the experts seemed to be always hanging around but unseen in the air, on surfaces and possibly elsewhere. It was seriously overwhelming. 

August rolled around and my phone rang. Stephen was calling to tell me that they had come to the realize that they had no choice but to put the boys back into daycare even though Theresa had determined that she would take a year off from teaching. She was on strict limits with lifting anything over 10lbs. so it was impossible to manage the boys alone. My immediate response was simply an affirmation that it was really the only way forward.

 We were all spent. We were all exhausted and stressed beyond the ability to give them good care and continue to pay attention to the work in front of us. Theresa’s tumor was found to be a schwannoma or nerve sheath tumor as a result of radiation she had to endure to deal with neuroblastoma she had as a toddler. It will one day require an extensive surgery but for now it’s a wait and see situation. How does a mom of two young babies and a career just stop it all in a normal stressful life, let alone during a pandemic? She spent a lot of time exercising and resting and regaining her footing after so many blows in rapid succession. In order to do that, the boys had to be in daycare out of the safety of the house, among other kids from other families in the middle of a pandemic knowing both that there was great risk if anyone caught the virus and an equally great risk if they didn’t. We were living in the proverbial rock and hard place. 

It took until February before the virus entered the daycare and when it did, it had to shut down for two weeks. We went over to Stephen’s to watch the Superbowl knowing that we could be exposed but not at all wanting to believe it. A friend suggested that kids aren’t actually transmitting the disease to others so, of course, I went to Dr. Google and found validation to that idea. When I did, we headed over and I held and coddled my boys. Days later, Bobby was positive for it. 

I was pretty frightened when I found out that he had because suddenly the abstract became real for all of us. I had long before determined that if I got the virus as a result of the boys in daycare, I would be able to accept the consequences of my choice to spend time with them. I had determined that if it took me to my end, I would go down as a hands-on grandmother. I’d caught a few colds and had my nose swabbed several times in the months prior to Bobby’s positive test but so far had avoided it. I suppose those negative tests gave me a false sense of security. Like most of us, when I want something bad enough, I can do all kinds of mental gymnastics to determine that what I want is the good and right thing for me, no matter what supposed evidence is in front of me. Unfortunately, the only thing that can break through my denial or avoidance of reality is the consequence of my choice. Bobby’s positive test was indication that I was very likely going to have to face the reality of my own battle with Covid 19. Of course, I got sick a few days later and was sure that I was Covid positive. I was not. I didn’t ever get it. That said the reality that I was exhausted from the threat of it was only magnified a hundred percent. I was determined to get vaccinated as soon as possible. 

After spending the whole month of February almost entirely separated from Stephen’s family, when I was able to get in line for the vaccine, I jumped at the chance. I had been following Dr. Michael Osterholm’s podcast every week as well as other reputable sources and had no fear at all of getting it. A friend I know in Nebraska has shared a video from our mutual friend, Dr. Tyler Martin, an infectious disease specialist. I worked for Dr. Martin in the early 90’s and after exposure to his incredibly intelligent mind and passion for immunology and infectious disease prevention, I also highly trusted him. Most of all, though, I wanted to be able to live my life without reference to Covid 19. I wanted to visit my elderly parents with pre-existing conditions, go grocery shopping without a mask and attend a live music event again. 

I had to drive out to Midland, Texas, to obtain the first dose of the Moderna vaccine. CVS had just obtained them and the slots here in Austin filled up faster than lightning. The community offered vaccinations were unavailable to me as well. I just kept trying and trying and this was the first one I was successful at getting an appointment for. I enjoyed a nice drive to west Texas and a night in a motel before heading home to experience a few days of side effect. Three weeks later, I searched again and found a follow up shot at a CVS in Palestine, Texas, three hours east of here. As spring came and mask requirements were lifted for the fully vaccinated, I was full of optimism and life started to return to normal until the end of July when my chest started to tighten and I struggled to breathe. 

Pneumonia. I could hardly believe it. I’d heard a bit on the news about breakthrough infections being diagnosed in a few places attributed to the Delta variant that had devastated India but the thought was that it was largely only found in those with underlying conditions. As one with a Mixed Connective Tissues disease, I suspected that I too had caught the Delta variant somewhere. I headed to the emergency room and was surprisingly able to get right in. In that little space on the bed near curtains pulled around me, I heard a lot of coughing, groaning and people asking questions about the virus. I heard doctors talking about lab tests, chest x-rays and how each person was being affected by Covid. One man was in the middle of cancer treatment and the virus had overwhelmed his sinuses to the point that he was experiencing excruciating headaches. Another patient could hardly talk for lack of air. All I could think to myself was, “If I do not already have Covid-19’s Delta variant, I will most certainly have it before I leave here!” 

The doctor ordered a chest x-ray and Covid test for me and we waited. I told him I was fully vaccinated and his reply was that he was too but had just come back to work after two weeks off with the Delta variant. This was the end of July. It would be just weeks and the numbers in our county would soar. The ER where I was treated would close off the entrance with caution tape and turn away patients because they were over capacity. The county health department put out bulletins letting us know we were again in the red stage. This time, however, life went on with very little disruption in public life. Then school opened. 

My daughter-in-law, thinking that the worst was behind us, had taken a new position at a local elementary school in the Special Ed department. She discovered that as a teacher in the Leander School District she would be able to put Bobby in an Early Learning Environment preschool where kids who qualify for an extra boost before Kindergarten attend. The cost would be half of what they were paying for his care at the private preschool/daycare he was in so she enrolled him. AJ would continue at the private school for another year. Three of our family members in three public schools meant that the two unvaccinated littles could potentially bring the virus home again but there was honestly nothing apart from all of us isolating in a cave to avoid the risk. Again, I determined that if I go down from Covid, this time a breakthrough case, I will go down as a full-time grandmother.  Then came the booster. 

A friend in the neighborhood posted on Facebook that she had gotten her booster and I immediately searched for an appointment. In days I had a third dose of the Moderna MRNA vaccine. It kicked my ass just like the other two so I was confident that I’d be in good shape by the time I was through. Another friend in the hood mentioned htat she was enrolled in a study with the University of Texas that would be monitoring antibody levels, both natural ones and those created by the vaccine. I did a search and enrolled as well. A few weeks later I received my results and discovered that I have >2500 vaccine antibodies in my blood stream. That is WAY over their standard measure. Armed with this data, I have been living my life since. Out of respect for others and when required, I still wear a mask if necessary but I am confident that I am protected against Covid 19.  My life goes on and I am most grateful.

This is a hard time to be alive but geez, the reality that I still am…alive, is pretty cool when I stop and think about it. I turned 60 this year and that’s saying something. I live with Mixed Connective Tissue Disease. I have also had some really crazy health scares over the decades. I have loved and hated western medicine. I have loved and hated eastern medicine. I have loved life. I have hated life. I need to write about the disease, the healing, the process and all of it. 

Autoimmune disease was suspected in my body when I was 16 and began to deal with pain in my knees and elbows for no apparent reason. A visit to the doctor, a referral to a specialist and monthly appointments for a year to rule out his suspicion of Systemic Lupus made life a bit precarious for a while. The symptoms would wax and wane and I was often sick with something but by the summer of my sophomore year I felt good enough to participate in a summer mission experience in Estes Park, Colorado. The time I spent in the mountains with fresh air, good food, plenty of exercise and a whole new group of friends seemed to suit me perfectly. When I returned home and to my doctor, I was given the good news that whatever I had was in remission and I was free to return in a year if I needed to. As a young, zealous Evangelical Christian, I was sure that God had healed me and this nastiness was behind me. 

I continued to be seriously involved in Christian ministry. It was my thing. I finished high school and went off to college only so that I could get a 4 year degree and go on staff with a mission agency I admired. I gave myself to Evangelical faith with abandon fully believing that God had an abundant plan for my life. I didn’t ever worry about or even think too much about an autoimmune disease of any kind. In 1982 Dean and I got engaged and planned to go on a mission to Uganda, East Africa. In order to go we had to submit to several required vaccinations. As we started that process, he would get a shot and barely notice it. I would get a shot and be down for a day or two. The Yellow Fever vaccine really threw me under the bus. We were raising money for the trip and all of the sudden the well dried up. 

We had just enough funds for one of us to go and I knew that it should be Dean. I am not sure if my intuition told me that I would not do well there or if it was just an acknowledgement of the fact that I was planning a wedding at the same time and it just seemed like a good idea for Dean to go without me. Either way, it was such a good decision. Dean came home having had a bout of malaria that almost took his life and most certainly would have mine. He had been taking chloroquine to keep it away but a variant of drug resistant malaria found him and he was very, very ill. 

The early eighties were days without instant communication and unreliable phone service so we didn’t even know he was sick until he came home and told us his harrowing story. He’d lost a good 25lbs and when he walked out of the gate at the airport (back in the day when family could go up and greet people after landing) I barely recognized him. He went on to have several reoccurrences with the disease until his doctor sent his bloodwork to the lab at the CDC and discovered that it was this new variant and prescribed a different medication for it. He has been malaria free since. 

There was one thing I was absolutely certain of the day Dean returned home looking like he’d spent time in a concentration camp. I knew that I had dodged a bullet that had it entered my body, it would have been a fatal blow. I was full of gratitude that I had found the strength and courage to stay behind. I have no doubt that malaria would have done me in. 

It was unfortunate for me that as Evangelical people we had to find a way to miracle-ize the story. We had to find a way to see that God kept me home and kept me alive. There is a verse in the Bible, 1 Peter 3:7 that goes like this. 

“You husbands in the same way, live with your wives in an understanding way, as with someone weaker, since she is a woman; and show her honor as a fellow heir of the grace of life, so that your prayers will not be hindered.”

This verse is just accepted in the Evangelical kingdom as truth and this was the way we made sense of these experiences that year. The lesson to be learned was that I was a weaker vessel and Dean needed to know that in his bones. This one lesson would follow me for three decades and be a contributing factor to the exacerbation of my body’s war against itself. 

I had been in remission and able to live a very full life until March of 1985 when I had my first baby just after my 24^th birthday. The hormone changes that come with pregnancy functioned as the trigger to move my body back into battle with itself. As with all autoimmune diseases they rarely present in one full blown obvious illness. Instead the body responds to stress, biological, environmental and mental stress by triggering the inflammation response. It can begin slowly or flare up in earnest. It can affect any part of the body with connective tissue, which is pretty much all of it. After my baby was born it began to attack my bladder. Though that first year of motherhood was literally the best year of my life, I constantly dealt with some really annoying pelvic pain. I was diagnosed with interstitial cystitis, a painful condition that causes the lining of the bladder to crack and bleed and Endometriosis where the lining of the uterus goes the wrong way and attaches to tissue outside of it. The cystitis was dealt with through medication but a surgery was needed for the endometriosis.

My doctor performed a laparoscopy. With two little incisions he inserted instruments, including a camera into my abdomen and looked around. He said it looked like someone had shaken coffee grounds around my organs. He explained that cells from my uterus had gone the wrong way and that whenever I had my period, those cells did too. The result of that process was intense pain every month. He lasered these spots off and encouraged me to hope for better days ahead. He also encouraged me to consider having another baby if I wanted anymore because the endometriosis would likely return and could result in infertility. When my son was 15 months old I found out I was pregnant again. 

I cannot say that I loved being pregnant the first time until well into it. The first 6 months of that pregnancy were overwhelmingly horrible. I threw up in earnest for the first three months and then at a less intense level for another three. Finally, by Thanksgiving I was able to enjoy a meal without an abrupt exit. By March I was ready to have my baby. My long torso made it appear as though I would be having a small baby, even my doctor predicted 5-6lbs. After 18 hours of labor and a few minutes of pushing an 8lb. 1oz. beautiful little red head arrived in my arms. I was completely gone. Having Stephen was so fun that it overwhelmed all of the other nonsense. 

My second pregnancy was much less severe in terms of morning sickness but getting the baby here much more difficult. A little nausea in the morning satisfied by a few soda crackers and life went on. I worked part time in an office job and looked forward to another baby who would arrive almost two years after the first one. It was going so well in the beginning I thought that maybe I actually would end up with the four kids I’d wanted. That sense of bliss didn’t last for long because in the 13^th week everything turned upside down. On a calm weekday morning, with my son playing by himself in the living room and chattering to his toys, I sat down to read and pray for a bit. I had put the kettle on the stove for hot tea and when it reached boiling, I got up from my chair, turned to face the stove and felt a sudden gush of fluid escape from my body. As I stood there knowing my water had just broken I went into another dimension and began to work the problem.

I had a regular checkup scheduled that afternoon but knew I could not possibly wait for it. I immediately called the clinic. They wanted to see me right away so I found a sitter and went in. I have learned that memories associated with trauma are vivid and intense and as I write this, I am right there in that space in time. I was greeted by the nurse and my doctor with serious concern. It felt as if they were talking…very slowly. A sample of the fluid was looked at under the microscope. A fern like looking cell revealed that it was indeed amniotic fluid. My heart sank. My doctor grabbed his tiny little black doppler, squeezed a bit of gel on me and sought for an audible heartbeat. He found it. A strong and healthy little whishing heartbeat sound entered the acoustics of the room and a hushed silence briefly fell over us. My doctor said it was unusual to hear it so clearly so early but that it sounded very good. This was 1986 when ultrasound technology was just beginning and hearing a heartbeat was rare for mothers. It was so amazing to me. He then sent me straight up to the hospital for a visual ultrasound used only in crisis situations. I’ve rarely been so afraid.

As I laid on the table with the technician’s warm jelly all over my belly and watched as she moved her probe around, my husband standing by my side watching too, the most amazing thing occurred. This little human waved an arm past the screen revealing all five fingers and seeming to wave at us. Dean later told me that when he saw that he took it as a sign that the baby was waving to tell us she was going to make it. As human beings we find the hope where we can and that was it for that day. It was enough to get us through. 

There was no reason to admit me into the hospital that day but it was confirmed that the amniotic sac surrounded my baby had a hole in it near the top. I was sent home with the instruction to do only light house work and call the clinic if I started cramping or had any other issues arise. I now know that for my doctor and others, it was a certainty that I would miscarry. It was much later before I learned that I had actually been given a less than 1% chance of carrying a baby to term. Instead of the expected miscarriage, however, I remained pregnant for weeks. 

Fifteen weeks later, by emergency c-section, while under anesthesia because the epidural failed to numb my left side, a team of specialists in a teaching hospital where I’d been in bed for 3 weeks, delivered a 2lb. 2oz baby girl. A perfectly formed, very pink and crying baby girl. Everything about it was miraculous. Everything about it was also profoundly traumatic. I have spent the rest of my life trying to understand life lived in this kind of paradox. I have also learned that as a woman, I am not a weaker vessel. I am only an equally strong but different vessel.

I share the story of my babies’ births because the pregnancies are both so directly related to my health, to autoimmune disease and how I have processed it all throughout my life. It was pregnancy and hormones that functioned as the trigger to move me out of remission. It was figuring out how to live life as a young wife, mother and teacher that exacerbated the disease. I have enjoyed seasons of remission and horrific flare ups. Simple colds, flu and viruses have flattened me. Stressful circumstances in my life have also contributed to this reality in my life. I was on medication for several years but at present take just a thyroid medication for anything to do with autoimmunity. I have learned so much. I have lived a beautiful but hard life. 

This past summer I spent weeks meeting with a holistic dietician for issues relating to my gut health. She believes that if I can live 100% holistically, I can rid myself of autoimmune disease. I’m not certain that is possible for me. In fact, I’m pretty certain that it is not because I have other facets of my life that I value more than being 100% cured if this is the route to the cure. To change my life that drastically at 60 would take an intense focus and radical changes in several places and though I continue to make changes all of the time, I do not expect to be fully healed in my lifetime.

I have made many of my dietician’s suggested changes. I have been taking the supplements suggested in response to the lab tests she had ordered for me because they make sense to me right now.  I have found it very helpful and encouraging. At the same time, the expectation to be 100% healed comes with an awful overwhelm. It is also always and I mean it sincerely, ALWAYS shame inducing. It implies that anything less than arrival at perfection is not enough. It is NEVER enough. 

This last week I heard an OnBeing podcast discussion with Kate Bowler. I listened after my friend Jayne suggested it to me. As I sat here in my office, organizing my closet for the umpteenth time, I had it playing in the background. She said something in the discussion that broke me wide open. I don’t remember the words right now because the memory of breaking down in a heap and of feeling the flow of tears stream down my face is overwhelming my brain so that I cannot recall them. I remember just saying out loud,

I am enough. 

What I have done is enough. 

What I will do is enough. 

Whatever level of healing I obtain is enough. 

It is ENOUGH. 

I hope I can write more about how this illness has impacted my life in the days and weeks to come. After breaking open again this past week I have realized that living with Mixed Connective Tissue/Autoimmune disease has been a thread in my life for most of my life. It has also been something that has been hard to talk about sometimes. No, it’s hard to talk about all of the time because when I do, I feel like I’m standing on a stage looking at folks with loaded nerf guns pointing at me. The spongy nerf projectiles all have a cure written on them with a sharpie marker and I am supposed to catch each one and apply that cure to my body. The deal is that only if I catch and apply them ALL will I be able to be fully whole. So…if you are reading this and have such a loaded nerf gun, please refrain from shooting it if you can. I have probably heard of your cure and I have probably spent a good deal of change trying to embrace it. 

In 2004 I found treatment for my daughter’s eating disorder and mental illness. She is alive and living her best life now. I can hardly express how close we came to losing her. As a woman of deep Evangelical faith and practice, I first looked to God for guidance. When I determined to seek experts for her care, many in my circle pushed hard against me. Nonetheless, I ignored their guidance and sought to understand her illnesses instead of imagining I was going to be excluded from the suffering because I belonged to Jesus. My daughter was dying right before my eyes and the advice from the faithful was not helping.

The professionals at Children’s Hospital in Omaha helped unpack her eating disorder and discovered that her story began when my water broke at 13 weeks and my pregnancy was threatened- 15 weeks later after being in and out of the hospital – she was born viable but not without unseen major trauma to her emotional brain. In other words there were physiological reasons for her illness. It was not a lack of faith or an attack from Satan that made her ill. There were realities that I had to face if she was ever going to have a chance at a healthy adult life. Everything in our lives was touched by the hard work it took for her to reprogram her brain and learn to live with it and beyond it. I am beyond grateful for every medical and psychological expert who was there with guidance and direction because without them we would surely have buried her at 17.

I know that it’s frightening to live in a time where a rogue virus is wreaking havoc in the world. I also know that well meaning people want to believe that their faith is more powerful than the virus. I get that. If that’s where you are consider this. Sometimes it’s important to evaluate whether you are experiencing actual faith or are instead living with a conditioned presumption that you are excluded from reality because you are in and others are out. Maybe you believe that you and your community of believers have found the one right way to live and those outside of the faith have not. Think about that like I did 20 years ago.

What has too often been lost is that discovering real faith, the kind that allows us to risk something unusual and succeed requires that we pursue God with real effort, hard personal reflection and the willingness to change ourselves. I’ve been required to do some pretty significant turning around (known as repentance) before being able to gain any inspired perspective. Even then, as a human being I’m always aware that I can be more driven by my ego than any kind of genuine faith. That kind of faith in my life has come almost exclusively from places of significant brokenness.

I’ve learned that as a Christian living in a western country, I’ve had the privilege of a life lived without the threat of death from most respiratory illnesses. Pneumonia = antibiotics and IV support. H1N1 was kept at bay by a well functioning CDC with government support. Many people didn’t even know that it too could have blown up here when it hit our shores. We are used to life without threats from these diseases. We have been equally privileged to travel to foreign countries with access to vaccines for the illnesses we don’t even have here like Yellow Fever. Our freedom from these diseases has made us vulnerable to the belief that we are special and beyond the scope of these viruses. Covid 19 is proving that we are not.

It’s hard to face this. It’s hard to grasp that what you have embraced as faith might not be faith at all. It’s very hard to face what is real and find the willingness needed to alter your life. It can cost you as you move away from the life you thought you knew. Letting go of the security of a religious devotion you believed would hold you secure forever is very difficult. But if you can, trust me when I say that life lived with genuine faith grounded in the real world is way better than any life lived with a presumptive one.

We moved to Utah in January of 2005 and I have been making visits back to my home in northeast Nebraska once or twice a year since we left sixteen years ago. As much as I loved my life there and as much as my brain is full of so many great memories, very painful circumstances took me away and every return brings memories of the kind of terror that only another mother with a seriously ill and/or dying child can comprehend. Every visit forces me to respond to the reality of those experiences in the middle of the joy of seeing my family and good friends again. Every year, I process the trauma because I really cannot avoid it. Trauma is a nasty beast that holds its loaded gun in the holster waiting to pull its trigger. The slightest thing can make that happen. A drive by a familiar place, an innocent word from someone who knew me before and my heart is pounding in reaction. Thankfully, after 16 years of return visits I’ve processed it, strategized for it and most of all healed so much that this time, I was able to feel the pull of the triggers and let the bullets go right on through and out into space. It was the first visit where I did not fall into a heap of tears or have to take a long fast walk to release the energy in order to return to “normal”. I have been patting myself on the back and allowing myself to feel the joy upon my return. I.am.so.grateful.

One of the most amazing things took place after running into an acquaintance at a softball field. I hadn’t seen this friend since 2004 when her family departed for a mission in Africa. She is a beautiful, resilient woman I enjoyed chatting with as her daughter’s teacher but never really got to know. We exchanged updates and went on our way. The next day a message on Facebook Messenger arrived from her and though I wanted to reply, I knew that if I did it would have be with a true account of myself and real honestly, that can be just too much for many people. Nonetheless, I have worked to damn hard for a pretentious response indicating that I’m equal to the devoted Evangelical Christian school teacher she once knew so I replied with a very short update about my life to which she replied with a question. As I set out to reply the reality of the last time I saw her and what I was actually dealing with at the time was a clear as it has ever been. I just started writing and this is what came to me. I’ve edited out specifics but the gist is still here. I write for my own self as much as for anyone else on a similar journey who might be encouraged to hang in there.

My Reply.

When I was acquainted with you as your child’s second grade teacher, I was on my way out of the worldview that one has to accept Christ in a personal way to be saved (from Hell). I didn’t realize it then, but when H’s eating disorder was killing her and we started seeing the professionals in Omaha, the layers of our lives up to that point started to be addressed in ways that we never imagined would be necessary. At the same time they were layers of dysfunction that we ached to deal with. It was incredible to have a safe place away from home to do just that. H would talk about something that was happening in her life and often we would sit there with our chins dropped and mouths open trying to grasp how we got to that place. The therapists were so full of compassion and nonjudgmental that we found it very easy to open up and deal with things. 

H was born 3 months early after my water broke at 13 weeks, resealed and broke 3 more times. It remains a profound miracle that she is here with us. A local OB/gyn told us that we had a less than 1% chance of having a baby after the water breaks that early. It was a profound experience. It was simultaneously an experience of intense suffering for me and for my baby. Suffering that we didn’t know was actual trauma. Trauma altering the developing brain and body of my unborn baby, trauma impacting my sense of safety in the world, trauma that made our bond very difficult because it was so often interrupted by a medical crisis that would separate us and trauma that couldn’t not be dealt with by scripture or prayer alone. H had spent the first month of her life without being held…I had spent that month without holding her. I bond easily with babies and kids but the reality is that what happens in the brain to bond children to their mothers and gives them a basic sense of safety in the world was missed for H and my sense of being her mother was almost entirely a spiritual/intellectual experience instead of a human one. Her eating disorder’s genesis was in this reality. 

Even though the psychiatrist told us from the very first appointment that her eating disorder was rooted in this trauma, as I would return home and answer people’s questions about how she was doing etc. the exchanges would too often be very difficult and add to our pain. I stopped going to morning prayer with the teachers before school because trying to pray what they were praying about evil spirits and demons was so unhelpful and shaming, not to mention so far removed from my experience that I couldn’t begin to handle it. Thankfully the administrator let me out of that or I would have had to leave the job altogether. It was the most difficult time of my life. As Dean and I were being given so much grace at Children’s Hospital in Omaha, as H’s literal life was being saved and she was given back to us in a healthier place, I would come home and face incredible opposition to the truth of our situation. 

I began to shift away from church and the Christian school beyond teaching my class of students because it became a very unsafe place for me. That said, life in Conservative, pull up your boot straps and get to work Nebraska was full of obstacles in terms of ever healing from the trauma that my family needed to heal from. One reality that caused no small amount of grief was that the world was not as black and white as our faith community and home culture said it was. At face value it would seem that we could have different opinions about things but underneath there was always the search for the exact truth. Unfortunately when the only answer you want is the one right one, it becomes an overwhelming commitment to perfection. When I would share what I was learning about life being much more gray than that, it would create a lot of fear and uncertainty in those hearing me. I struggled to deal with my own growth along the way and found it increasingly problematic to discuss any of it with those in my world back in Nebraska. 

What began to happen was that we would go to Omaha for a family session and be so encouraged at H’s growth and progress, have a great discussion on the way home as we processed what we’d learned and then I would go to work the next morning. Every day was a day to arm myself and exist with caution because when I would share something we had learned, it would so threaten this worldview in the hearer that they would have to counter it. Over and over this took place and it was excruciating. I had to hold up the pretense that I was okay with the advice, the strong and repeated suggestion that H was possessed by a demonic spirit and/or just spoiled. There was no other acceptable worldview even though many just watched from afar and supported us as people, it was a brutal existence.

I am solely responsible for Hannah’s admission to Children’s Hospital back then because I was literally watching the life inside her die. I knew before God that if I did not find her genuine help somewhere she would die. She went into their program on the verge of cardiac arrest. We were within hours of losing her. Two weeks later she bled out IN treatment. Her hemoglobin was a 3.9 when they called and told us they had to admit her to the Med/Surg Unit and start her on blood transfusions. They said that she was within minutes to hours of death again. No one had any possible explanation and she was in treatment where the environment was completely controlled. So twice in three weeks, our daughter was almost dead. Those events in themselves were traumatizing for me. 

The reality is that because of my lived experiences at that time I was forced to question everything or retreat into some kind of spiritual fog that made no sense. I began to see certain people coming my way and physically turn around and walk away. A close friend gave me a book from some nut job in the deep south who had taken every illness and linked it to a spiritual cause. The author insisted that the reader use only the KJV when thinking through possible causes to an illness. It was literally the most dangerous book I’d read up to that point and ushered in no small amount of confusion. Because it came from a trusted friend I took it but that experience led to the drawing of many severe boundaries with most people because I simply could not sift through all of the nonsense, and there was A LOT of it. 

H tried to come home 3 times before the psychiatrist told us that if she did not get long term treatment in a residential facility she would die. We looked at five places and let Hannah choose the one she felt most comfortable with. That was Avalon Hills in northern Utah. That program saved her life. We gulped a bit when she chose it because it was in Utah among Mormons.  That said we both knew that we were desperate and she had to buy into the program or it would not work. We also had to make it clear that we did not go there to save Mormons or become Mormon but to find the help she needed to heal. The treatment program was secular and clients were there from all over the country. Because we did not demand that the program be Remuda Ranch in Arizona, an Evangelical treatment center, we chose to leave the pale of the Evangelical world and we have never been able to return. 

After multiple failed attempts for Hannah to return to Norfolk the only choice we had was to leave. God opened up the way for us to do that and we do not regret a thing. That said, once you have allowed yourself to leave the pale, your family and community like we did, it’s not possible to go back. 

This is the first visit since 2005 that I have been able to come to Norfolk and be entirely my own self. I have a lovely Utah wildflower tattoo on my left calf, I occasionally swear, I rarely read the Bible though much of it is stored in my brain and guides me continually, I pray in secret, I do not even consider someone unsaved or lost and I do my best to simply be fully present in the moment. I came on this trip with the intention of resisting nothing that came at me but just letting it be what it is and love people wherever they are.

As a deeply empathic person and someone who has always had a strong commitment to social justice, I see my growth as the result of the intense shadow work I had to do. Work that has allowed me to discard the beliefs that weren’t really my own to begin with. In other words, apart from abortion, I have always been a liberal-minded person and I am not living in any way inconsistent with the values that encouraged me to become an Evangelical in the first place. I’ve realized that I didn’t ever really believe in a literal or inerrant Bible but said I did because that’s what we say. I would even have said I believed it but as they say the proof is in the life we live. To live with integrity has been incredibly freeing and I can say with sincerity that few of my beliefs are fixed or set in a way that cannot be altered. My core values of love, justice and mercy are however, very fixed. 

I am deeply aware of God, the Holy Spirit/Jesus in my life but have no thought that my experience or understanding is the one and only legitimate spiritual one. I have enjoyed deep connections with Mormons, Buddhists, Muslims and others in the places where I’ve lived.  I now live in N. Austin with no desire or intent to convert people – trust me, there the Southern Baptists have that down 🙂 . My newest connection has been with a couple from India who are Jainist. Before we left Utah in 2019 we went for a bagel and coffee and met a Muslim couple who sought political asylum in the US from Turkey. Both were PhDs affiliated with Utah State University. We had just been through the bombing of an Islamic temple in Australia and the anti-muslim sentiment in Utah was significant. Dean and I did everything we could to counter that. We introduced ourselves and looked Mehmet in the eyes and said, “We are so glad you are here.”  Gonca and he became instant friends. This is the world that I inhabit and I can’t ever go back to the one I knew when you knew me. 

I know this is a long answer to your question. I really did genuinely love seeing you in person this week. I was so blessed by that evening because all of the relatives I was with have greatly struggled with my growth over the years and to be with them and be received was pure joy. Author Brene Brown says that people are harder to hate close up and I have used that as a path to stay connected to my family and some dear friends. We don’t agree on most things but love and connection at the core can’t easily be thrown out when we are present with each other. I’m so thankful. It’s been a long road. 

Wishing you all the best!! 

A year ago this week we celebrated our grandson’s 2nd birthday with friends and family. We went to a play gym, touched equipment freely and breathed in air with strangers. We had so much fun when our little guy announced, “Bobby’s Birthday!” to all of us while he waited for his daddy to light the candle on his cupcake. Pleasure chemicals released themselves in our collective brain and we all smiled with joy. We didn’t know that in just a short week, everything would change and joy would become more of a memory than a present emotion.

Daycare closed.

Work moved from office to home for the guys and from school to home for Theresa.

I was instantly living in a world inhabited by three other adults and two toddlers. It was delightful and horrible in equal measures. My husband and I had only lived here in Texas for 6 months with half of that time spent apart. Adjusting to a new place takes time and with that comes the adjustment to the new routine created by his work. His new position with Maxi Lift required that he spend 50% of his time on the road visiting customers and attending trade shows. We had just reached a place where we had found a rhythm with each other’s presence one week and its absence the next. When the shutdown arrived all of that growth was lost. Just like that we were transported to an entirely new dimension and just like that so was the entire world.

As children in elementary school we all learn about seeds and plants. Those lessons teach us the early realities of what it means for a seed to undergo the changes required to sprout, take root, grow and reach a point of fruition. We learn that life is a continual circle of life, growth and death. We come to understand that a seed’s growth requires a meeting of elements beyond itself to get the job done. Wise teachers use the plant as a metaphor of human growth and change. Most of us live our lives with this understanding completely unaware that our early childhood school experience gave it to us, we just know it’s true. What is less understood for us as human beings is that the elements out there are not always kind to growing things. Two weeks ago, here in Texas, the elements directed by Mother Nature took an already captive people into a corner and whipped it about with ice, snow and frigid temperatures in a place where furnaces running are rare and insulation around pipes even more rare. As with plants in a garden facing elements like this, lives were threatened and some actually lost because it was just too much.

Growth in 2021 has been challenged to the depths for me. It wasn’t enough to go through the snowmageddon and survive but our little Bobby whose daycare had closed again (this time for just 2 weeks at the beginning of February due to a positive Covid test in his classroom) came home from daycare…and tested positive a week later. A few days later our son Stephen tested positive. A few days later, baby AJ tested positive…and a few days later our daughter-in-law Theresa tested positive. Everyone has come through with a mild case and quarantine ends on Thursday, an entire month. We have supported from outside through drop offs and talking through screens and a lot of FaceTime calls.We’ve taken what we thought were calculated risks but when any little sore throat or cough arose went into despair until the Covid test returned negative. The mind’s ability to make one literally sick is truly profound.

Last Thursday, after my negative test, I was desperate for a vaccine. So desperate that when my neighbor encouraged me to check the CVS website and I found it available out in Midland, Texas, just 5.5 hours away, I made an appointment. Last weekend I received my first shot of the Moderna vaccine. Today, Dean is volunteering in Bell County, an hour away so that he can get a shot because he doesn’t meet the criteria here in Texas. I think he’s helping to direct traffic today. Tomorrow he’ll assist with temperature checks. Two days off of work to get vaccinated because for us, it’s worth it. We’re about done in.

A podcast I listen to called the Osterholm Update from CIDRAP (Center for Infectious Disease Research and Policy) based at the University of Minnesota warns that a very difficult surge of the UK virus is on the way and yesterday The Houston Chronicle reported that every strain of the virus has been found there. Dr. O likens the reality of what is about to hit the U.S. to a Covid 19 hurricane that will bring us the worst season yet for this pandemic.

The experts say that the only way to achieve herd immunity in any reasonable amount of time is through vaccine distribution. These “experts” are infectious disease, immunology specialists and those in public health. If American’s resist the vaccine, the only alternative is to get the virus and take your chances at survival. As I take in that information, like anything else in 2021, it’s a walk through a hall of mirrors where delusional images abound and reality is only found in the knowledge that you have internalized over a lifetime. It’s profound when I hear others tell me that they aren’t putting anything like that vaccine into their body. These same people, many of whom will eat whatever they want, drink enough alcohol to persevere their liver for future generations to find in archaeological digs, smoke and take incredible risks in other ways, will not put that vaccine into their body? I say to myself, “What the incredible hell?” As if that isn’t enough, another friend told us that he’s certain Bill Gates is using the vaccine to do something nefarious to us because we know he sterilized thousands of young girls in Africa…Head spins at this “news”. As if that isn’t enough bullshit for a lifetime, my parents inform me that they were told that the government is going to be tracking them with the microscopic chip (that somehow finds its way through that vial of vaccine into the syringe and into the arm) if they get the vaccine. Thank God my mom replied with, “How can they think the government can’t find them right now if they want to?” Phew we dodged that bullet! My parents get their first shot on Friday.

It’s hard to grasp that this thing that arrived a year ago is still here, that we are all very much still dealing with it. But we are.

As I have been processing all of this in recent weeks one thing has really stood out to me. The choice to face life as it is and grow from it is the only thing that we all really have. The choice to be real – to face our fears and our own versions of crazy is what is vital to our living a full and meaningful life. I’m struggling right now. The only growth I have going on is what there is inside of me. I hope to be a different person as a result of having lived through this past year. Sunday we’re having a socially distanced birthday party for Bobby’s 3rd birthday and I’m so very grateful.